The data registry collects longitudinal data reflecting patient history, pain, psycho-social factors, quality of life, physical exam pain mapping, specialized ultrasound results, surgical findings and pathology. This includes the completion of validated questionnaires yearly for up to 5 years to assess depression (PHQ-9), generalized anxiety (GAD-7), pain catastrophizing (PCS), sleep scale, and endometriosis health profile (EHP-30).

With a goal of better understanding endometriosis we are particularly interested in;

• predictors of chronic pelvic pain;
• sexual pain;
  
• sexual quality of life;
• central sensitization;
  
• characterizing endometriosis
• linking gene mutations to clinical symptoms and;
• exploring transnational and behavioral implications of our research findings.
  

Patients at our centre have the opportunity to participate in biobanking of surgically excised endometriosis, as part of the World Endometriosis Research Foundation (WERF) Endometriosis Phenome and Biobanking Harmonisation Project (EPHect): https://endometriosisfoundation.org/ephect

Further information about our publications can be found at https://yonglab.med.ubc.ca

This study will characterize the treatments and outcomes associated with different uterine fibroid treatments in Canada, to understand patients' preferences and satisfaction with different medical and procedural interventions. More information about the study can be found at Clinical Trials.GOV

‎View a detailed list of our publications related to chronic pelvic pain and endometriosis. (Pdf)‎